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August Rare Disease Event Calendar

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Aug 3

Mon

6:00 PM – 7:00 PM

Aug 3 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: GI-Specific Nutrition Recommendations for Chronic Disease & Amyloidosis Patients

Presenter: Julia E. Carlson, RD, LDN

Click to Register

Aug 6

Thu

6:00 PM – 7:00 PM

Aug 6 Thu 6:00 PM – 7:00 PM

Relationship Support Session: Calm Your Body: Practical Somatic Tools for Nervous System Relief

Presenter: Hamide Eygoren, MAPP

Click to Register

Aug 10

Mon

6:00 PM – 7:00 PM

Aug 10 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: How to Get the Most Out of Your In-Person Medical Appointment

Presenter: Tracy Allen, RN, BSN, OCN

Click to Register

Aug 13

Thu

6:00 PM – 7:00 PM

Aug 13 Thu 6:00 PM – 7:00 PM

Rare Disease Session: Understanding Sadness vs Depression & When To Seek Help

Presenter: Kelly R. Fields, LMSW

Click to Register

Aug 17

Mon

6:00 PM – 7:00 PM

Aug 17 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: Taking Care of Caregivers: Recognizing the Load They Carry

Presenter: Adrienne Molteni, RN III

Click to Register

Aug 20

Thu

6:00 PM – 7:00 PM

Aug 20 Thu 6:00 PM – 7:00 PM

Amyloidosis Session: Living Well with Chronic Illness: Building a Daily Gratitude Practice

Presenter: Hamide Eygoren, MAPP

Click to Register

Aug 24

Mon

6:00 PM – 7:00 PM

Aug 24 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: Emergency Preparedness 101: Create a Plan Before You Need One

Presenter: Natalie R. Castillo, APRN

Click to Register

Aug 27

Thu

6:00 PM – 7:00 PM

Aug 27 Thu 6:00 PM – 7:00 PM

Rare Disease Session: When Rare Disease Tests Our Most Important Relationships

Presenter: Missy Maxwell, BSSW

Click to Register

Aug 31

Mon

6:00 PM – 7:00 PM

Aug 31 Mon 6:00 PM – 7:00 PM

Patient Best Practices Session: Understanding Your Care Journey: From Testing to Treatment

Presenter: Brian L. Miller II, RN, MSN, CCRN

Click to Register