Wednesday, June 11 03:00 PM - 03:50 PM America/Los_Angeles
One of the most important skills you can learn on your amyloidosis journey is how to get back up and keep moving forward after a health setback.
Dan Lier is a motivational speaker, business consultant, and amyloidosis social media influencer. Diagnosed with AL Amyloidosis in 2017, his life coach career helped him face this challenge. Through social media, Dan shares his journey, becoming a key resource and inspirational role model for patients. Dan Lier is a powerful force of optimism and achievement who believes every person is capable of incredible potential.
Office Hours: Dr. Arvind Bhimaraj – Cardiologist discusses Cardiac Amyloidosis
Dan
Lier
Session Leader
Arvind
Bhimaraj
Presenter
Wednesday, June 18 03:00 PM - 03:50 PM America/Los_Angeles
Dr. Arvind Bhimaraj will discuss the latest trends in Cardiac Amyloidosis Treatment.
Dr. Bhimaraj earned his medical degree from Gandhi Medical College in Hyderabad, India. He worked for the World bank on a Public health project on urban poverty and then attended a Master of Public Health program at The University of Kansas Medical center, Kansas City.
Choosing Your “Identity” and how it Impacts the Amyloidosis Experience
Dan
Lier
Presenter
Wednesday, June 25 03:00 PM - 03:50 PM America/Los_Angeles
Identity plays a significant role in the experience of living with amyloidosis. Your identity encompasses aspects such as your self-perception, beliefs, values, and the roles you fulfill in various areas of your life. How you understand and define your identity can greatly influence how you navigate the challenges and changes brought about by amyloidosis. One aspect to consider is how you choose to identify yourself in relation to your illness. Some individuals may choose to see themselves primarily as a person living with amyloidosis, while others may prefer not to let the illness define them. This can impact how you perceive yourself, how you interact with others, and how you cope with the physical, emotional, and social effects of the disease. Choosing to see yourself as a person first, rather than defining yourself solely by your illness, can help you maintain a sense of agency and autonomy in your life. It can also help you maintain a positive self-image and a sense of identity that is not solely based on your health status.
Dan Lier is a motivational speaker, business consultant, and amyloidosis social media influencer. Diagnosed with AL Amyloidosis in 2017, his life coach career helped him face this challenge. Through social media, Dan shares his journey, becoming a key resource and inspirational role model for patients. Dan Lier is a powerful force of optimism and achievement who believes every person is capable of incredible potential.
What are "Medical Goals of Care" & what you need to know about them
Dan
Lier
Session Leader
Stacey
Goodman
Presenter
Wednesday, July 02 03:00 PM - 03:50 PM America/Los_Angeles
Join our Zoom session, "What are "Medical Goals of Care" & what you need to know about them" where we’ll explore how to define and communicate your health priorities. Learn how to make informed decisions about treatments, discuss goals with your healthcare team, and plan for future care. This session will equip you with the knowledge to take control of your medical journey with clarity and confidence.
Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.
Expert and Community Perspectives on Attruby™ (acoramidis)
Dan
Lier
Session Leader
Barry
Trachtenberg
Presenter
Wednesday, July 09 03:00 PM - 03:50 PM America/Los_Angeles
Join BridgeBio Pharma, Inc for Expert and Community Perspectives on Attruby™. Learn more from our guest speakers, Dr. Trachtenberg (a cardiologist), Ken (person living with ATTR-CM and Attruby™ clinical trial participant), and Heather (BridgeBio Patient Access Liaison Director).
Dr. Trachtenberg is a cardiologist specializing in heart failure, heart transplantation, and cardio-oncology, and amyloidosis. Dr. Trachtenberg received his B.S. degree from the University of Pennsylvania and attended medical school at the University of Texas-San Antonio.