What are "Medical Goals of Care" & what you need to know about them w/ Dr Stacey Goodman
Dan
Lier
Session Leader
Stacey
Goodman
Presenter
Wednesday, July 02 03:00 PM - 03:50 PM America/Los_Angeles
Join our Zoom session, "What are "Medical Goals of Care" & what you need to know about them" where we’ll explore how to define and communicate your health priorities. Learn how to make informed decisions about treatments, discuss goals with your healthcare team, and plan for future care. This session will equip you with the knowledge to take control of your medical journey with clarity and confidence.
Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.
Expert and Community Perspectives on Attruby® (acoramidis)
Dan
Lier
Session Leader
Barry
Trachtenberg
Presenter
Wednesday, July 09 03:00 PM - 03:50 PM America/Los_Angeles
Join BridgeBio Pharma, Inc for Expert and Community Perspectives on Attruby™. Learn more from our guest speakers, Dr. Trachtenberg (a cardiologist), Ken (person living with ATTR-CM and Attruby™ clinical trial participant), and Heather (BridgeBio Patient Access Liaison Director).
Dr. Trachtenberg is a cardiologist specializing in heart failure, heart transplantation, and cardio-oncology, and amyloidosis. Dr. Trachtenberg received his B.S. degree from the University of Pennsylvania and attended medical school at the University of Texas-San Antonio.
Dan Lier - How to stop negative self-talk and improve your outlook and results in your amyloidosis journey
Dan
Lier
Presenter
Wednesday, July 16 03:00 PM - 03:50 PM America/Los_Angeles
Negative self-talk can be detrimental to our mental wellbeing and can hinder our progress in any aspect of life, including our journey with amyloidosis. Here are some tips on how to stop negative self-talk and improve your outlook and results: 1. Awareness: The first step in stopping negative self-talk is to become aware of it. Notice when you are being self-critical or using negative language towards yourself. 2. Challenge negative thoughts: Once you are aware of negative self-talk, challenge those thoughts. Ask yourself if they are true or if they are just a result of negative thinking patterns. 3. Replace negative thoughts with positive ones: Whenever you catch yourself thinking negatively, replace those thoughts with positive affirmations. Focus on your strengths and accomplishments, no matter how small they may seem. 4. Surround yourself with positivity: Surround yourself with positive people who support and encourage you. Avoid negative influences that bring you down. 5. Practice self-care: Take care of yourself physically, mentally, and emotionally.
Dan Lier is a motivational speaker, business consultant, and amyloidosis social media influencer. Diagnosed with AL Amyloidosis in 2017, his life coach career helped him face this challenge. Through social media, Dan shares his journey, becoming a key resource and inspirational role model for patients. Dan Lier is a powerful force of optimism and achievement who believes every person is capable of incredible potential.
“Office Hours” with Dr. Heather Landau Hematologist/Oncologist Memorial Sloan Kettering
Dan
Lier
Session Leader
Heather
Landau
Presenter
Wednesday, July 23 03:00 PM - 03:50 PM America/Los_Angeles
Welcome to "Office Hours" with a Hematologist/Oncologist! This is a platform for you to ask any questions you may have about blood disorders, cancer treatments, and anything else related to hematology and oncology. Feel free to ask about various types of cancer, the latest research in the field, treatment options, and any concerns you may have about your own health or the health of a loved one. Our goal is to provide you with accurate and up-to-date information to help you make informed decisions about your healthcare. So, don't hesitate to ask your questions and engage in a discussion about anything related to hematology and oncology. We are here to help you navigate through this complex and challenging field of medicine. Let's get started!
Dr. Landua works as part of a multidisciplinary care teamnfor patients with hematologic disorders. I have a special interest and expertise in treating patients with disorders that arise in white blood cells called plasma cells, including multiple myeloma and light chain (AL) amyloidosis.