Wednesday, October 22 03:00 PM - 03:50 PM America/Los_Angeles
Join Art Still, former Super Bowl champion, as he shares his journey of resilience, teamwork, and purpose beyond the game. Learn how his mission at still4life.org inspires strength and hope for patients and families facing life’s toughest challenges.”
Art Still, former NFL All-Pro and Kansas City Chiefs legend, now champions the amyloidosis community through his foundation Still 4 Life. After his own diagnosis with hereditary ATTR, he raises awareness, promotes early detection, and inspires patients to face challenges with strength and hope.
Turning Frustration Into Strength: Coping with Chronic Disease
David
Gusick
Session Leader
Thomas
Bartlett
Presenter
Wednesday, October 29 03:00 PM - 03:50 PM America/Los_Angeles
Living with a chronic disease often brings daily frustrations that can feel overwhelming. This session offers practical strategies, emotional tools, and peer support to help transform those challenges into strength, resilience, and a renewed sense of control.
Tom is a rare disease technology educator. He advises patient organizations and pharmaceutical companies so that they can better serve the needs of their patient communities. Tom is living with Myasthenia Gravis and works closely with the MGFA (Myasthenia Gravis Foundation of America) and serves as a National Patient Ambassador.
How Clinical Trials Are Changing Amyloidosis Treatment
Dr. Stacey
Goodman
Session Leader
Dr. Rodney
Falk
Presenter
Wednesday, November 05 03:00 PM - 03:50 PM America/Los_Angeles
Clinical trials are driving rapid progress in amyloidosis treatment, from new drug classes to earlier diagnosis. In this session, Dr. Rodney Falk explains how trials work, what patients can expect, and how research today is shaping tomorrow’s care.
Dr. Rodney Falk the Founder and Emeritus Director of the Brigham and Women's Hospital Amyloidosis Program, Harvard Medical School. Dr. Falk is an internationally recognized expert in cardiac amyloidosis, he combines cutting-edge research with compassionate patient care to improve outcomes and advance treatment options.