Many amyloidosis patients experience balance problems that increase fall risk. This session explains why balance issues occur in AL and ATTR amyloidosis, why falls are especially dangerous, and what patients and caregivers can do to reduce risk. Practical, actionable, and empowering.

Tom is a rare disease technology educator.  He advises patient organizations and pharmaceutical companies so that they can better serve the needs of their patient communities. Tom is living with Myasthenia Gravis and works closely with the MGFA (Myasthenia Gravis Foundation of America) and serves as a National Patient Ambassador.

Join performance psychologist Bob Kriegel and therapist Marilyn Kriegel as they share their amyloidosis journey. Leveraging their expertise in peak performance and relationships, they’ll discuss navigating diagnosis and daily life as a couple, patient and caregiver. Gain professional yet personal takeaways on resilience and the power of partnership.

Bob Kriegel is a PhD psychologist, bestselling author, and performance expert. He helps leaders, teams, and individuals break through limits, build resilience, and perform at their best under pressure, drawing on decades of work in sports, business, and life.

This session focuses on how and when to communicate new or worsening symptoms to your care team, what information providers need to guide next steps, and how to have a clear escalation plan in place. The goal is not patient decision-making, but timely communication that prevents emergencies.

Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.