From hematologists to pulmonologists to genetic counselors—learn which specialists should be part of your care team, what they do, and how to advocate for comprehensive care at every stage of your SCD journey.

Bone issues are common with SCD but often ignored. This session explores why bone health matters, what causes degeneration, and how nutrition, movement, and medical care can help preserve mobility and strength.

Dr. Patrise Holden, Founder and CEO of The Language Key®, is a creative consultant, music therapy educator, and podcast host. She co-founded a music arts therapy program and is a passionate advocate for the disabled and terminally ill, known for her engaging educational programs and award-winning work in communication.

Managing relationships can be hard when you live with an invisible illness. We’ll talk about how to handle people who don’t understand your pain, how to educate loved ones, and how to protect your peace.

Dr. Patrise Holden, Founder and CEO of The Language Key®, is a creative consultant, music therapy educator, and podcast host. She co-founded a music arts therapy program and is a passionate advocate for the disabled and terminally ill, known for her engaging educational programs and award-winning work in communication.

Food is medicine, especially with SCD. Discover how to eat for energy, immunity, and pain prevention. We'll share practical tips for daily nutrition, hydration, and overcoming fatigue with the right fuel.

Dr. Patrise Holden, Founder and CEO of The Language Key®, is a creative consultant, music therapy educator, and podcast host. She co-founded a music arts therapy program and is a passionate advocate for the disabled and terminally ill, known for her engaging educational programs and award-winning work in communication.