Thursday, September 18 11:00 AM - 12:00 PM America/Los_Angeles
In Show and Tell: Healing Through What We Hold Dear, participants are invited to share 3 meaningful objects that represents strength, hope, or healing in their journey. This powerful session explores how personal items can carry deep emotional significance and foster connection, reflection, and resilience within our rare disease community.
Experienced Researcher with a demonstrated history of working on health and behavioral sciences data. Skilled in Data Management Cycle, Quantitative Data Analysis, Survey Research and Design, and Research Database Design, as well as oral and written commnication. Strong health professional with an MPH (Maternal and Child Health focus) and an MS in Experimental Pathology (Environmental Pathology focus).
Thursday, September 25 03:00 PM - 03:50 PM America/Los_Angeles
Attendees will learn foundational practices, based on positive psychology research, that enable us to live more healthfully and resiliently in the liminal space of a life that is challenging and rewarding at the same time. We'll discuss our capacities to be both anxious and brave, angry and generous, exhausted and hopeful and practice fast skills that bring us to a better place in any one moment.
Dr. Patrise Holden, Founder and CEO of The Language Key®, is a creative consultant, music therapy educator, and podcast host. She co-founded a music arts therapy program and is a passionate advocate for the disabled and terminally ill, known for her engaging educational programs and award-winning work in communication.
SCD Vocab #3: Medical Terms Every SCD Patient Should Know
Patrise
Holden
Session Leader
Thursday, October 02 03:00 PM - 03:50 PM America/Los_Angeles
Build your confidence in managing Sickle Cell Disease by mastering key medical terms every patient should know. This session will break down complex words into plain language, giving you the tools to understand your care and communicate with your doctors.
Isolation & loneliness: How it impacts your health
David
Gusick
Session Leader
Patrise
Holden
Presenter
Thursday, October 09 03:00 PM - 03:50 PM America/Los_Angeles
Feeling disconnected can affect both mind and body, but connection brings strength. Join us to explore how building supportive relationships can ease feelings of isolation, boost resilience, and create healthier, more joyful lives.
Dr. Patrise Holden, Founder and CEO of The Language Key®, is a creative consultant, music therapy educator, and podcast host. She co-founded a music arts therapy program and is a passionate advocate for the disabled and terminally ill, known for her engaging educational programs and award-winning work in communication.