My biggest challenge living with Sickle Cell Disease is...
Patrise
Holden
Session Leader
Patrise
Holden
Presenter
Thursday, October 30 03:00 PM - 04:00 PM America/Los_Angeles
Living with sickle cell disease brings daily challenges—physical, emotional, and practical. Join us to listen, share, and connect as patients open up about their biggest challenges and what helps them cope. Your story or insight could make a difference for someone else.
Dr. Simone Uwan MD: Author of A Doctor Living in a Patient's Body
Patrise
Holden
Session Leader
Simone
Uwan
Presenter
Thursday, November 06 03:00 PM - 04:00 PM America/Los_Angeles
2-time #1 bestselling author:“A Doctor in a Patient’s Body: Dreaming BIG with Sickle Cell Disease and Chronic Pain” and ALL RISE:The Sickle Cell Community vs. the Medical Establishment.
2-time #1 bestselling author:“A Doctor in a Patient’s Body: Dreaming BIG with Sickle Cell Disease and Chronic Pain” and ALL RISE:The Sickle Cell Community vs. the Medical Establishment
Howard University Hospital - Sickle Cell Disease & Stigma
Marjorie
Dejoie-Brewere
Session Leader
Lorraine
Brown
Presenter
David
Gusick
Presenter
Wednesday, November 19 10:45 AM - 11:45 AM America/Los_Angeles
Explore how stigma affects mental health in the sickle cell community. Join Dr. Marjorie Dejoie-Brewer, Rev. Dr. Lorraine Brown, David Gusick, and Oluwakemi Oguntimehin as they discuss therapy, AI tools, and access to emotional support worldwide.
Rev. Dr. R. Lorraine Brown, DMin, RN, and Certified Health Minister, combines nursing, public health, and ministry to support young adults with sickle cell disease. Through Project SPIRIT Sickle Cell, she integrates spirituality with health education to foster healing, hope, and personal transformation.
Howard University Hospital - Sickle Cell Disease & Stigma
Marjorie
Dejoie-Brewere
Session Leader
Lorraine
Brown
Presenter
David
Gusick
Presenter
Wednesday, November 19 10:45 AM - 11:45 AM America/Los_Angeles
Explore how stigma affects mental health in the sickle cell community. Join Dr. Marjorie Dejoie-Brewer, Rev. Dr. Lorraine Brown, David Gusick, and Oluwakemi Oguntimehin as they discuss therapy, AI tools, and access to emotional support worldwide.
David Gusick is the founder of Somebody To Talk To, a program bringing patients, caregivers, and doctors together for free weekly sessions. With 30+ years in systems architecture and entrepreneurship, he is building a global support model to improve quality of life for rare disease patients.