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February Sickle Cell Disease Event Calendar

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Feb 19 Thu 03:00 PM - 04:00 PM

Hydroxyurea Without the Fear: What SCD Patients Should Really Know Click to view session details

Click to Register

Hydroxyurea Without the Fear: What SCD Patients Should Really Know

Dr. Lewis

Thomas

Presenter

Patrise

Holden

Session Leader

Thursday, February 19 03:00 PM - 04:00 PM America/New_York

Hydroxyurea is one of the most studied treatments for sickle cell disease, yet many patients never try it. In this session, we’ll openly discuss benefits, risks, side effects, and common fears. No pressure, no judgment, just the information you need to decide if hydroxyurea is right for you.

Dr. Lewis Thomas is a medical doctor, "Sickle Cell Warrior," and founder of The Sickleverse, an online community for sickle cell education and advocacy. After 5 years as an NHS GP, he now focuses on empowering patients and carers to navigate the condition with confidence and medical insight.

To Register: https://bit.ly/4kfFiKt

Zoom Meeting ID: 82150670978

Feb 26 Thu 06:00 PM - 07:00 PM

LYFGENIA Explained: A One-Time Gene Therapy for Sickle Cell Disease Click to view session details

Click to Register

LYFGENIA Explained: A One-Time Gene Therapy for Sickle Cell Disease

Dr. Anjulika

Chawla

Presenter

Patrise

Holden

Session Leader

Thursday, February 26 06:00 PM - 07:00 PM America/New_York

LYFGENIA is a one-time gene therapy for people with sickle cell disease. In this session, we explain how it works, who may qualify, the possible benefits, and the real risks in clear, simple language. No hype, no pressure. Just facts to help you decide.

Dr. A pediatric hematologist-oncologist and Brown University professor, she previously held leadership roles at bluebird bio and spent 20 years at Rhode Island Hospital. She is a renowned specialist in sickle cell disease clinical development.

To Register: https://bit.ly/4bVguF4

Zoom Meeting ID: 84114818118

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Somebody To Talk To, Inc. is a CT nonprofit corporation operating through a fiscal sponsorship with Players Philanthropy Fund, a Maryland charitable trust recognized by IRS as a tax-exempt public charity under Section 501(c)(3) of the Internal Revenue Code (Federal Tax ID: 27-6601178). Contributions to Somebody To Talk To are tax-deductible to the fullest extent of the law.