David Gusick

David Gusick

David received his BA from Cornell University & his MA from NYU’s Interactive Telecommunications Program (ITP). David has been on the cutting edge of Internet technology since the early 90s and specializes in designing and building complex digital systems that create efficiencies and better outcomes to their traditional analog counterparts. A few years ago, David personally experienced how inefficient and antiquated emotional support delivery is in the United States. David's goal is to eliminate ALL barriers to professional emotional support including cost, scheduling, stigma and make FREE high quality impactful emotional support easily accessible to EVERY Duchenne family regardless of location, education, income or access to medical professionals. Somebody To Talk To is the culmination of two and half years of development.

Dan Lier

Dan Lier

Dan Lier is a motivational speaker, business consultant, and amyloidosis social media influencer. Diagnosed with AL Amyloidosis in 2017, his life coach career helped him face this challenge. Through social media, Dan shares his journey, becoming a key resource and inspirational role model for patients. Dan Lier is a powerful force of optimism and achievement who believes every person is capable of incredible potential.

Cath Jayasuriya and Dusty

Cath Jayasuriya

Cath Jayasuriya is a certified life and health coach, with a master’s in counseling, who practices yoga, mindfulness and present moment living. She is a writer, film director, and the founder of Coalition Duchenne and Duchenne Without Borders, which raise funds and awareness for Duchenne. Her 29-year-old son Dusty Brandom has Duchenne.

Cath’s award-winning documentary Dusty’s Trail: Summit of Borneo (www.Dustystrail.org) can be streamed on Amazon Prime Video and Tubi.

Cath has initiated groundbreaking research, most recently with Dr. Eduardo Marban working on cardiac stem cells — currently in trials by Capricor. She also worked with Professor Steve Wilton on foundational work on oligos that led to the first FDA treatments of Duchenne. Among other initiatives, Coalition Duchenne/Duchenne Without Borders have recently started an outreach project distributing medical equipment for boys with Duchenne in rural areas around the world.

Ian Warburg

Ian Warburg

With an international business career spanning more than thirty years as a senior executive in an investment and management company, and master’s degrees in organizational development and marriage and family therapy, Ian brings a rich and informed perspective to all he does. Fascinated by people, and passionate about making the right kind of difference in their lives, Ian delights in the power of intensive experiences, and in providing therapeutically informed coaching.

In addition to his work as a therapeutically informed coach, Ian serves on the boards of the Aquaya Institute and Save Westport Now, as their board chairs, and remains active in a number of business ventures. Ian loves being a stranger in strange lands, spirited driving, alpine skiing, boating, good books, and enjoying time with wonderful friends.