This session focuses on how and when to communicate new or worsening symptoms to your care team, what information providers need to guide next steps, and how to have a clear escalation plan in place. The goal is not patient decision-making, but timely communication that prevents emergencies.

Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.

Held monthly for newly diagnosed ATTR amyloidosis patients. This is designed as a one-time starter session to help recently diagnosed ATTR patients understand the basics, process what’s happening, and plan next steps. We cover vocabulary, symptoms, treatment categories, and questions for your doctors, plus community resources.

Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.

I spoken with the top doctors in the field of Amyloidosis. I've done deep dives trying to learn about the most pressing issues facing amyloidosis patients and how to address those challenges. In this session I will be sharing the most important lessons I've learned about what amyloidosis patients should prepare for and how to navigate a challenging situation.

David Gusick is the founder of Somebody To Talk To, a program bringing patients, caregivers, and doctors together for free weekly sessions. With 30+ years in systems architecture and entrepreneurship, he is building a global support model to improve quality of life for rare disease patients.

Join Stanford’s Dr. Roy John to explore how medical devices like pacemakers, ICDs, and loop recorders manage amyloidosis-related heart issues. Learn how these tools monitor arrhythmias and improve care for both TTR and AL amyloidosis patients in this expert-led session.