Living with amyloidosis can be challenging, but with the right approach, it’s possible to thrive. Here are five tips to help you manage the condition and improve your quality of life:

1. Educate Yourself: Knowledge is power. Learn about amyloidosis, its types, symptoms, and treatment options. Understanding your condition helps you make informed decisions and communicate effectively with your healthcare team. Reliable sources like medical journals, patient advocacy groups, and trusted websites can provide valuable insights.
2. Build a Strong Support Network: Surround yourself with supportive family, friends, and healthcare professionals. Joining a support group, either in-person or online, can connect you with others who understand your journey. Sharing experiences and advice can be incredibly empowering and comforting.
3. Prioritize Self-Care: Managing amyloidosis requires a holistic approach. Focus on a balanced diet, regular exercise (as tolerated), and adequate rest. Stress management techniques like meditation, yoga, or deep breathing can also help improve your mental and physical well-being. Always consult your doctor before starting any new regimen.
4. Stay Proactive with Treatment: Adhere to your treatment plan and attend all medical appointments. If you experience new symptoms or side effects, communicate them to your healthcare team promptly. Early intervention can prevent complications and improve outcomes. Don’t hesitate to seek second opinions if needed.
5. Maintain a Positive Mindset: A positive attitude can make a significant difference. Celebrate small victories, set realistic goals, and focus on what you can control. Mindfulness practices and gratitude journaling can help shift your perspective and build resilience.

Thriving with amyloidosis is about taking charge of your health, seeking support, and embracing life with optimism. With the right strategies, you can navigate this journey with strength and hope.

Dan Lier is a motivational speaker, business consultant, and amyloidosis social media influencer. Diagnosed with AL Amyloidosis in 2017, his life coach career helped him face this challenge. Through social media, Dan shares his journey, becoming a key resource and inspirational role model for patients. Dan Lier is a powerful force of optimism and achievement who believes every person is capable of incredible potential.

In this session we will learn how new amyloidosis medications come to market and ultimately get prescribed to patients like you.

Kevin Freiert is a seasoned drug developer and business leader with a focus on patient-centered care and empowering patients to shape the future of medicine. He's known for his expertise in drug development, change management, and knowledge management, and he's the founder of Salem Oaks. He also hosts two podcasts, Raising Rare and Raising Improbable Developments.

Hello, I am a neurologist. I specialize in diagnosing and treating disorders of the nervous system, which includes the brain, spinal cord, and nerves. I use various tests and procedures to help diagnose conditions such as epilepsy, multiple sclerosis, Parkinson's disease, and stroke. I work closely with patients to develop treatment plans that may include medication, therapy, and lifestyle changes to help manage their symptoms and improve their quality of life. If you have any concerns about your nervous system or neurological health, please don't hesitate to reach out to me for assistance.

Dr. Amanda Peltier is a Professor of Neurology and Medicine at Vanderbilt University Medical Center where she serves as the Associate Vice Chair of Academic Affairs and Division Chief for the department’s Neuromuscular division. She holds certifications from the American Board of Psychiatry and Neurology (Neurology), the American Board of Electrodiagnostic Medicine, the American Board of Psychiatry and Neurology (Neuromuscular Medicine), and the United Council of Neurologic Subspecialties (Autonomic Disorders).

One of the most important skills you can learn on your amyloidosis journey is how to get back up and keep moving forward after a health setback.

Dan Lier is a motivational speaker, business consultant, and amyloidosis social media influencer. Diagnosed with AL Amyloidosis in 2017, his life coach career helped him face this challenge. Through social media, Dan shares his journey, becoming a key resource and inspirational role model for patients. Dan Lier is a powerful force of optimism and achievement who believes every person is capable of incredible potential.