Join us for an informative session where we'll explore kidney transplantation as a treatment option for Amyloidosis, focusing on when it might be considered and what to expect. We'll discuss how Amyloidosis affects the kidneys, the process of evaluating eligibility for a transplant, and the potential benefits and challenges of this treatment. Whether you're considering a transplant yourself or caring for someone who is, this session will provide valuable insights and support.

Dr. Richard Wlodarski is a neurologist and neuromuscular medicine specialist with expertise in neuropathies, myopathies, autonomic disorders, and amyloidosis-related nerve and muscle involvement. A University of Chicago–trained neurologist, he has contributed to research advancing the understanding of transthyretin (ATTR) amyloidosis and its impact on the neuromuscular system.

Living with a rare disease can often feel isolating, but building a strong support team can make a significant difference. In this session, we'll explore practical strategies for engaging friends, family, doctors, and advocates to create a network that understands and supports your unique needs. Learn how to communicate effectively with your care team, and discover tips for nurturing supportive relationships that empower you and enhance your well-being. Join us to gain insights and tools that will help you strengthen your personal support system.

David Gusick is the founder of Somebody To Talk To, a program bringing patients, caregivers, and doctors together for free weekly sessions. With 30+ years in systems architecture and entrepreneurship, he is building a global support model to improve quality of life for rare disease patients.

Food does not need to be perfect to help. Learn simple routines that stabilize energy, digestion, and symptoms across long term conditions. We will build a stable week plan, hydration cues, and a grocery short list. Leave with rules you can follow even when you are tired. Includes a grocery short list and a stable week meal rhythm.

Join us for an informative session where we will explore second-line treatment options for those experiencing relapsed or refractory AL Amyloidosis, with a focus on the use of venetoclax. Our experts will provide insights into how this treatment works, share experiences from the City of Hope (COH), and discuss what patients might expect during therapy. This is a great opportunity to learn more about your options and connect with others who understand the journey you are on.

Dr. Michael Rosenzweig is Chief of the Division of Multiple Myeloma and Co-Director of the Amyloidosis Program at City of Hope. A hematologist-oncologist with expertise in plasma cell disorders, he cares for patients with multiple myeloma, Waldenstrom macroglobulinemia, POEMS syndrome, and all forms of amyloidosis, including AL, TTR, AA, and LECT2. He trained at Boston Medical Center and Memorial Sloan Kettering Cancer Center, and previously served as a Clinical Instructor in Medicine with the Amyloid Treatment and Research Program at Boston University.

Flares are less scary when you have a plan. Build a step by step playbook for bad weeks: early signals, rest rules, meds and questions, support asks, and when to escalate. Leave with a flare checklist and a one page guide you can share with family and your care team. Includes a shareable one pager for family and your clinicians.

Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.

Join us for an enlightening session designed to familiarize you with the SAVE trial, a groundbreaking initiative aimed at the early diagnosis of amyloidosis. This session will provide you with vital information on the importance of early detection, how the SAVE trial works, and how it could potentially benefit you or your loved ones. Our experts will guide you through the process, discuss the latest research, and answer any questions you may have, ensuring you leave well-informed and empowered. This is a valuable opportunity for anyone affected by amyloidosis to gain insights and hope through advancements in medical research.

Lisa Lee, M.D., is an Associate Clinical Professor in the Department of Hematology and Hematopoietic Cell Transplantation at City of Hope. Dr. Lee's journey into medicine began with an interest in biology research during college, which evolved into a desire to see how science could directly help people. She chose oncology due to its research-driven nature and the potential to make significant impacts on patient care.

Held monthly for newly diagnosed ATTR amyloidosis patients. This is designed as a one-time starter session to help recently diagnosed ATTR patients understand the basics, process what’s happening, and plan next steps. We cover vocabulary, symptoms, treatment categories, and questions for your doctors, plus community resources.

David Gusick is the founder of Somebody To Talk To, a program bringing patients, caregivers, and doctors together for free weekly sessions. With 30+ years in systems architecture and entrepreneurship, he is building a global support model to improve quality of life for rare disease patients.

Join us to explore the promising world of second-line treatment options for AL amyloidosis, focusing on the City of Hope's experience with bispecific antibodies. This session will provide an in-depth look at how these innovative therapies are being used to fight this complex disease, offering new hope where traditional treatments may have fallen short. Learn about the science behind bispecific antibodies, hear firsthand patient experiences, and gain insights into what these developments could mean for your treatment journey. We're here to help you understand your options and support you every step of the way.

Sarah Lee, M.D., has always been drawn to medicine by a deep desire to care for others. As a hematologist-oncologist at City of Hope®️ Cancer Center Duarte, Dr. Lee helps diagnose and treat blood disorders, with particular expertise in multiple myeloma and light chain amyloidosis. She is dedicated to a thoughtful, patient-centered approach to cancer care, making it a priority to understand each patient’s goals and help guide them through their care with clarity and compassion.

Join us for an engaging session where we'll explore how innovative AI tools are transforming the diagnosis of cardiac amyloidosis. Learn about the latest advancements that can help detect this complex condition earlier and more accurately. Our experts will explain these technologies in simple terms and discuss how they can lead to better treatment outcomes. This is a great opportunity to ask questions and understand more about your or your loved one's health in a supportive environment.

Driven by his compassion for those fighting cancer and devotion to precision, Faizi Jamal, M.D., is committed to providing the most optimal cardiovascular care for his patients. Before joining City of Hope, Dr. Jamal worked for five years at the Northwestern University Feinberg School of Medicine in Chicago. He received his medical degree from the University of California Irvine's School of Medicine and completed his residency and fellowship at Cedars-Sinai Medical Center in Los Angeles.

Join us for an enlightening session with Dr. Tibor Kovacsovics, who will discuss the important role of upfront autologous stem cell transplantation in treating primary AL amyloidosis. Learn how this treatment can impact patient outcomes, what to expect during the process, and how it fits into the overall management of the disease. This session is designed to help patients and caregivers understand advanced treatment options and make informed decisions about their health care.

Dr. Tibor Kovacsovics is Chief of Hematology and Medical Director of Leukemia at City of Hope Cancer Center Phoenix. A hematologist-oncologist with 20 years of clinical research experience, he specialises in AML, ALL, stem cell transplantation, and amyloidosis. He trained at Harvard Medical School/MGH/Brigham and Women's, co-founded the Utah Amyloidosis Program at Huntsman Cancer Institute, and has served as principal investigator on dozens of landmark hematology studies.

Join us for a compassionate and informative session with Dr. Horst, who will discuss the gastrointestinal symptoms commonly experienced by those with Amyloidosis. Learn about the causes of these symptoms and explore various treatment options that can help manage and alleviate discomfort. This session aims to empower you with knowledge and practical advice, enhancing your quality of life while living with Amyloidosis.

Sara Horst, MD, MPH, FACG, AGAF, is Professor of Medicine in Gastroenterology, Hepatology, and Nutrition at Vanderbilt Health. While her broader expertise includes inflammatory bowel disease, she joined VAMP to focus on how amyloidosis affects the gastrointestinal tract and how symptoms can be managed. Her work also uses digital health and outcomes research to improve patient care.

Join us for an informative session where we'll clarify the role of cardiac biopsies in diagnosing Amyloidosis-CM. We'll discuss why this procedure is sometimes necessary, how it helps in making an accurate diagnosis, and reassure you about its safety when performed at specialized centers of excellence. This meeting is designed to ease your concerns and provide you with the knowledge you need to make informed decisions about your health care.

Amanda C. Peltier, MD, MS, is Professor of Neurology and Medicine and Chief of the Neuromuscular Division at Vanderbilt University Medical Center. Her work focuses on peripheral neuropathies, including amyloidosis-related peripheral and autonomic neuropathy. She is active in ATTR neuropathy guideline work and has contributed to identifying clinical trial endpoints for neuropathy.