Facing the future can feel uncomfortable, but planning brings peace of mind. Join us to learn how to make informed choices about care, finances, and communication so your wishes are known and your loved ones are supported.

Stacey Goodman, MD completed her hematology training at the NIH and Vanderbilt University before joining the faculty in 1993. She helped create and lead the Vanderbilt Amyloidosis Multidisciplinary Program (VAMP) until her retirement in 2021. She currently serves as a member of the board of directors at the Amyloidosis Foundation.

Learn how easy-to-use digital tools and wearables can help you manage symptoms, track progress, and stay connected to care. Discover how simple technology can reduce stress, improve communication, and enhance your quality of life every day.

Tom is a rare disease technology educator.  He advises patient organizations and pharmaceutical companies so that they can better serve the needs of their patient communities. Tom is living with Myasthenia Gravis and works closely with the MGFA (Myasthenia Gravis Foundation of America) and serves as a National Patient Ambassador.

Caring for a partner with a chronic illness can strengthen or strain even the closest relationship. Join us to discuss communication, emotional balance, shared responsibility, and ways to protect both partners’ wellbeing.

Heart failure is a major challenge for amyloidosis patients. In this session, Dr. Sarswat shares how to recognize early warning signs, manage daily symptoms, and work with your care team to protect your heart health and improve quality of life.

Dr. Nitasha Sarswat is a cardiologist at UChicago Medicine specializing in advanced heart failure, transplantation, and cardiac amyloidosis. She combines clinical expertise with research to help patients better understand and manage the impact of amyloidosis on the heart.