5 (more) Things every amyloidosis patient needs to know
David
Gusick
Presenter
Dr. Stacey
Goodman
Session Leader
Wednesday, March 25 06:00 PM - 07:00 PM America/New_York
David Gusick is the founder of Somebody To Talk To, a program bringing patients, caregivers, and doctors together for free weekly sessions. With 30+ years in systems architecture and entrepreneurship, he is building a global support model to improve quality of life for rare disease patients.
Facing Fear & Pain in Amyloidosis: How to Take Back Control and Shorten the Storm
Cath
Jayasuriya
Presenter
David
Gusick
Session Leader
Wednesday, April 01 06:00 PM - 07:00 PM America/New_York
Fear, pain, and uncertainty can feel overwhelming with amyloidosis. But avoiding them often makes them worse. In this session, you’ll learn simple, practical techniques to face challenges head-on, reduce emotional stress, and regain a sense of control so you can move forward with more confidence each day.
CAR-T Therapy for AL Amyloidosis: What’s New, What’s Real, and What’s Next
Heather
Landau
Presenter
Dr. Stacey
Goodman
Session Leader
Wednesday, April 08 06:00 PM - 07:00 PM America/New_York
CAR-T therapy is emerging as a potential future option for AL amyloidosis. In this session, Heather Landau reviews the latest CAR-T developments, how it works, who may be eligible, current trial data, and what AL patients should realistically know today versus what’s still ahead.
Dr. Landau works as part of a multidisciplinary care team for patients with hematologic disorders. She has a special interest and expertise in treating patients with disorders that arise in white blood cells called plasma cells, including multiple myeloma and light chain (AL) amyloidosis.